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Diary of Janet Huang (Huang Jianing) 28-12, 2011- 08-01,2012

2011年12月28日的日记
我骨穿结果出来了,坏细胞比上个疗程多一点点,白细胞有点低,今天打催白针明天再打化疗。医生说这次化疗方案换一下。我这次也是住在窗户边,躺在床上就能晒到太阳。爸爸不让我到外面跑来跑去,只能躺在床上看看书、做做手工,偶尔起来站在窗户边欣赏欣赏外面的风光。冬天大多的树上都是光秃秃的,风吹得窗户咯咯的响,有时也会卷起地上飘落的黄叶,到处都是萧条的景象。时间过得可真快,再过几天旧的一年即将过去,崭新的2012年就要来到。回首这生病的两年,让我饱尝了人世间的酸甜苦辣,但愿我新的一年脱离苦海,重见幸福,重新回到我日夜思念的校园

December 28,2011
The bone-piecing result turned out not so good with more BAD blood cells and LOW WBC so they gave me the special injection and would do a new chemotherapy tomorrow. I lived aside the window bed again to enjoy the sunshine. Daddy didn’t allow me to go outside thus I could only lie down reading and doing DIY. I could occasionally stand watching views outside. All I saw was some bared winter trees and brown leaves blown by the wind floating in the air. All I heard was squeaky window sound. How time flies! 2011 will die and 2012 will be born. I think I suffered enough bitterness these 2 years and I wish to enjoy the sweetness in the coming year. I miss my school and I am eager to go back.

 

2011年12月29日的日记
我今天开始打化疗了,现在病房里在消毒,由于紫外线对人体的细胞也有杀伤,所以病房里的人都出来了。我也提着没打完的药水到隔壁一个姐姐这里来。一般消毒都要半个小时以上,我们这个病房有三个病人,再加上陪伴的人。我们这些打化疗的病人抵抗力很差,只要不是卧床或是发高烧,病房几乎每天都要消毒。我今天一般情况还好,也没有什么特别难受。我喝了好多开水,医生说茶可以排毒,每次化疗期间护士都要叮嘱我们多喝开水,减少肝脏和肾的毒害。为了能早点出院,医生和护士的话我一般都很听。

December 29,2011
I started my chemotherapy again. They were sterilizing the ward with the ultraviolet which is harmful to human body so all the people went outside and I went to next door with the saline water. There are 3 patients in our ward and we are very weak, so they do the sterilizing every day for more than half an hour unless there is somebody in fever. I felt okay today and drank a lot of water to help the liver and kidney to release the detoxification. I carefully obey every command of the doctors and nurses hoping to leave the hospital soon.



2011年12月30日 宁海白血病孩子黄佳宁的病房日记
今天早上查房的时候我问医生:“这次化疗打多长时间?”医生告诉我:“这次化疗的量比较小,但时间比较长,要打14天。”哎呀!我以前一般是5天,也有打6天或7天的,这次居然两个礼拜,看来我这次回家过春节是没多大希望了。可医生鼓励我:你只要表现好,白细胞升得快,也是有希望的。我也只有默默祈祷.希望我这次白细胞升的快.

December 30,2011
“How long will the chemotherapy last?” I asked the chief doctor this morning when he came to check my bed. “It will last longer for 14 days since the dose is lighter.” He replied. Oh my Lady GaGa! It lasts only 5-7 days before, but it doubled this time. It seems no hope to celebrate Chinese New Year at home… “The period would be shorten if your WBC increase fast.” He encouraged me. All right then, wish God bless me!


2011年12月31日 宁海白血病孩子黄佳宁的病房日记
再过几个小时2011年将要过去。在这一年中,我既失去了很多也得到了很多。自从生病后我就今年移植前上了差不多一个月的校。在学校里只能听听课、写写作业,什么劳动课、体育课统统不能参加。我很珍惜这来之不易的学习机会,每天的新课文一上,我都抢先到老师那里背颂过关,就是去杭州移植的前一天,我还背着书包在学校里念书。这一年我经历了在无菌仓里的孤独和痛苦、有移植后的喜悦、也有复发后的伤心、有爱心同盟叔叔、阿姨…和社会上好心人的再一次相助。我虽然失去了宝贵的光阴,但得到了热心人给我的温暖和与困难作斗争的勇气。愿新的一年给我带来好运,祝大家元旦快乐!

December 31,2011
2011 will be finished in a few more hours. During this year I gained many and lost much as well. I had one-month of school just to listen and write without labor or sports. Anyway, I still cherished that chance and was active to recite passages. I even went to school one day before the operation. I experienced loneliness and pain in the bacteria-free room; I felt joy after marrow operation; I suffered sorrow of the recurrence; and I received help from the society. Though I lost the treasure time, I gain caring and courage in return. May the good luck bless me and wish everybody a happy new year!



2012年1月1日佳宁日记:
今天是元旦,是新年的第一天,如果我在读书的话,也放三天假,这几天也呆在家里复习功课准备迎接期末考试。可这一切都是两年前的了。我现在最大的心愿就是赶快找到十个点的配型,少打化疗早点移植,并且移植前后顺顺利利,我们一家人又可以开开心心地生活在一起。今天是化疗的第四天,离这次化疗结束还有十天,愿接下来的日子每天顺利,低细胞期也不感染发热,我可不想再呆在医院里过春节。前年还有爸、妈相陪,今年就只能爸爸陪我,妈妈和小弟弟两个人呆家里更可伶。真正希望新年到,好运到。也祝大家新年幸福安康!
January 1
This is the first day of the year and there are 3 holidays. Two years ago I was home preparing the Final Examination while now I was hoping: to find my perfect marrow match; to finish the chemotherapy and to begin the operation soon; to be smooth and healthy after treatment; to live happily with my family. This is the 4th day of the chemotherapy and there are 10 days left. Wish every day a smooth day without any infection and fever even with the low cells. If not, I could only have Daddy to accompany me during the Spring Festival since Mummy has to accompany my little brother. Don’t let me stay in the hospital, PLEASE! They say New Year brings the good luck, I really believed in it! May happiness and healthiness fly to everybody’s home!


白血病孩子--黄佳宁的病房求救日记 2012年1月2日
我站在窗边傻傻地望着窗外,一棵矮小的树锁定了我的眼睛,针状的叶子搭拉着脑袋,大多的叶子都已泛黄,而旁边的几棵相同的小树则青翠欲滴。我正在想:这棵小树,你怎么啦?难道你耐不住严寒?我好奇地顺着树干往下看,原来在离地面半米左右的地方一大块数皮没有了,露出了白色的树干。我可伶的小树,你一定很疼吧?是谁对你下了毒手?古话说:人怕伤心树怕伤皮。如果一棵树被剥了皮,它就会慢慢地死去。因为树皮能将树根吸收的养分和水传送到树的全身各处,一旦树皮被破坏,远离树根的树冠就得不到营养和水份,当阳光照射后,树冠的水分蒸发消失后,小树就会缺水而死。一棵幼小 的生命即将结束。我对小树说:你千万不能倒下,你要像我一样坚强,勇敢地面对困难的挑战。小树我为你加油!希望你比旁边的树长得更高、更大。
January 2
I was standing along the window and staring outside. A short tree caught my eyes. Its needle-like leaves withered while the other tree leaves alive. I wondered what happened to this tree. Is it too cold? I looked down and realized it lost its skin. How painful it must be! As the old saying goes: It’s cruel to hurt people’s heart or tree’s skin. It will soon die without its skin for it will loose all its nutrition and water. “Don’t give up and live firmly as me.”I said to the poor little tree. “Bravely face the challenge and I am with you! May you grow taller and bigger.”


白血病孩子--黄佳宁的病房求救日记 2012年1月3日
一个自称为婷婷姐姐的杭州小女孩,她今年十二岁,她说愿意和我交朋友,并经常鼓励我、祝福我。从她的短信中我得知:去年爱她的三爷爷也得了白血病,住院没多长时间就走了。自那以后她非常伤心,也不爱与人交往,真的在痛苦中无法自拔。自从从报纸上看到我乐观、开朗的性格和与疾病、困难作斗争的精神后,她头脑清醒了,她说要向我学习,要勇敢地面对发生的一切。是我的这种精神给了她力量,她现在正集中精力投入到紧张的复习当中,她还说有机会带我游西湖。我没想到小小的、生病的我还能影响一些软弱的人。我的坚强也来自于环境的磨练和社会热心人的关心、帮助!愿这位姐姐期末考试能考出好的成绩,真的能像以前一样开心、快乐地生活着!妈妈曾经告诉我:环境可以改变一个人、困难可以压垮一个人,我们应该调整心态去面对,挺过去就是强者。在这里,我愿每个人都做生活中的强者。
January 3
I made a new friend from HangZhou and I call her Sister TingTing. She’s 12 years old and always encourages and blesses me. From her text message I know her grandpa also suffered the Leukemia last year and passed away very soon. She was full of sorrow and refused to communicate with the others. She began to change ever since she read my passage on the newspaper. She tried to learn from me and was focus on preparing the final examinations. She invited me to view the West Lake. I would never consider of effecting the others for my firm was originated from the others. May this Sister have a pleasing score and live as happily as before. Mummy once told me: “One would be changed by the environment and be destroyed by the obstacle, and it depends on one’s attitude. Everyone is a superman when they use the right attitude.



--黄佳宁的病房日记 2012年1月4日
我眼睛痛了两、三天了,多次叫医生过来看也没发现什么异常。今天在左眼角这里发现了好多小疹子,医生和护士都过来仔细看后说这是疱疹。疱疹一般长在神经上,别看它像痱子,可疼起来很难熬,医生说大多数人长在脊背上,也有人长在头面部或颈部。我隔壁床奶奶说她的孙女就长在脸上,疼痛连饭也吃不来,没两天眼睛和嘴巴都向患侧倾斜。我也是牙垠和脖子酸痛,因为它牵连着神经,医生也给我开了针对这种病毒的药。我连洗脸都不敢洗,周围肌肉只要轻轻一碰就钻心的疼。唉呀!真倒霉,化疗就够我难受了,还加上这讨厌的疱疹又来凑热闹。
January 4
I had sore eyes for more than 2 days but nothing abnormal was diagnosed. I found lots of little rashes in my left eye corner and was diagnosed as Herpes. Usually it grows in the nerve and looks like heat rashes but is very painful. It grows in the back, face or neck mostly. The lady in our ward said her granddaughter had it on her face and was ouch to starve. Even eyes and mouth tilt to the rash position. I got sour and pain in the teeth and neck for it connects with the nerve. I dare not to wash my face in order not to remove the medicine. I could hardly touch my ache muscle. How unlucky of me to suffer both the chemotherapy and rashes at the same time!


黄佳宁的病房日记 2012年1月5日
今天我左边脸、左眼都是肿的,左边头皮和牙垠也是痛的。下午医生开了两张会诊单子:我去眼科看,医生检查说好的,就开了支眼药水;我去皮肤科看,医生确诊是疱疹,给我开了涂的药膏和在血液科挂的盐水,他说这种情况一般需要十多天才能好。刚才妈妈告诉我:四年级的班主任陈老师为我小弟弟买来奶粉,还有浙江大学宁海六班的陈晓超班长从我们村的一位信耶稣的姊妹所在的公司培训时得知我的情况,带头为我捐款,并委托我妈妈转告他的话语:叫我坚强、勇敢,祝早日康复!是啊!社会是残酷的,社会也是温暖的。自从我生病后,有送吃的、有送穿的、也有直接送钱的、也有送祝福的
January 5
I got swollen left face and right eye as well as sore left hair skin and teeth gum. Doctor listed 2 pieces of consultation sheet telling me to check the eye and skin. The optician gave me a bottle of eye drop and the dermatologist gave me some ointment and bottles of saline water. She noticed me it would last 10 days. Mummy told me Ms. Chen the homeroom teacher of Grade 4 bought my little brother some milk powder and Chen XiaoChao the Class 6 monitor of ZheJiang University NingHai branch raised the donation for me. She knew my situation from a girl of our town who believed in Jesus. She regarded me and encouraged me to be strong, brave and healthy! What a cruel society that nothing is possible without money while what a merciful community that I received so much food, clothes, money and blessing. 

黄佳宁的病房日记 2012年1月6日
站在窗边往外看,我发现道路两旁的树底部都刷上一层白浆,这是为什么呢?我好奇地问爸爸。爸爸笑着告诉我:你很细心,那层白浆是石灰水。石灰水有较强的碱性,是很好的杀菌消毒剂。秋天在树干上刷上石灰水,可以很好地保护树木不受害虫伤害。而且到了炎热的夏天,树干上这层白色的石灰水还可以反射一部分强烈的阳光,这样树木就不会让太阳晒得太难受,水分也不会蒸发得太快,树木才能健康地生长。哦!原来是这样,我又学到了一门知识,我们小孩子不懂就应该多问几个为什么?一定能得到宝贵的答案。
January 6
I was standing aside the window and watching the trees outside. They were coated with the white paint. I was curious and asked Daddy. He told me with a smile: “You do have sharp eyes. That white paint is alkalic lime water considered as an effective sterilizer. It protects trees from pests in the fall while it reflects the sunshine in the summer. It does help the trees grow healthily. Knowledge lies everywhere if we have the desire to learn.

黄佳宁的病房日记 2012年1月7日
我眼睛现在不太疼了,可左眼皮上一直连着头皮越肿越厉害,医生又给我加了一瓶药水,我看今天药水要打到明天天亮了。看来,今晚又睡不好安稳觉。我化疗还有三天结束,这段时间除了疱疹带给我的难受,其它方面还是挺顺利的。但愿接下来的低细胞期不感染、不发热,让我早一点回到家中。
January 7
My eye doesn’t hurt so much now but the skin of the eye and hair still ache. Doctor gave me another bottle of saline and it won’t be finished tonight thus I couldn’t have a nice sleep. Three more days for the chemotherapy and I pray for no infection or fever thus I could go back home soon.

黄佳宁的病房日记 2012年1月8日
我今早上差不多五点钟针才打好,整晚都没怎么睡好,眼睛肿得只有一条缝,闭上就感觉比较舒服。护士怕我今晚上又睡不好觉,在我手壁上又打了一根留置针,我想两根输液管一起打,上半夜就能打好吧?我爸爸今天为我买来一只鸭子放在医院的微波炉里清蒸,我一顿就吃掉两个大腿、两个翅膀、两只鸭掌,今天的饭吃起来特别香,我明天还想吃这个,可爸爸说过几天再给我买。离过年的脚步越来越近,我回家的心越来越急。
January 8
I finished the saline at 5 am this morning and didn’t sleep at all thus my eye is so swollen that I just want to close it. Nurse gave me 2 needles this time try to finish it before midnight to let me sleep. Daddy bought me a duck and put it in the microwave. I ate up 2 legs, 2 wings, and 2 palms. It was so delicious that I wish to have another one tomorrow, but Daddy promised me for next time. The Chinese New Year was accessing and I am more and more worried.
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