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Diary of Janet Huang (Huang Jianing) 23rd -30th January

宁海白血病孩子-黄佳宁病房日记 2012年元月23日
今天是大年初一,首先我祝所有关心我、帮助我的好心人新春愉快,龙年大吉大利、健康、平安每一天。我昨天上午针打到十一点就让护士阿姨给我拔掉了,我怕赶不上十二点的车。回家我以为妈妈准备了一桌丰盛的年夜饭,哪知小弟弟和妈妈一晚都没睡过觉,小弟弟前晚又拉又吐,并且发着高烧,小弟弟难受不停地哭闹,妈妈带他去医院看病,自己的饭都顾不上吃。今早爸妈又带小弟弟去医院了,看来这次也要打好几天针,你说这么冷的天要是在家里吃吃、睡睡、晒晒太阳那该多好呀!有些事情就是不由你算,真是没办法。但愿我小弟弟好得快,看到他那难受的样子我们的心情也不好受!
January 23

Today is the first day of Dragon Year on the Chinese Lunar Calendar and I would like to send my blessings to the kind who helps and cares me. I didn't finish the saline until 11am and then the nurse stopped it for me in order to let me catch the 12am bus. I thought Mummy would prepare us a nice dinner, but to our surprise, she didn't sleep over night because my little brother got a terrible fever with spitting and diarrhea and went to the hospital. He might need several needles. God bless my little brother be fine soon so we won't feel so upset for him and then we could eat, sleep and enjoy the sunshine together.

宁海白血病孩子-黄佳宁病房日记 2012年元月24日
我的梦想总是完美的,可现实却是那么的残酷:我高高兴兴地回家过春节,我想一家人快快乐乐地团聚在一起过上一个礼拜再回医院,可昨晚我高烧了,爸爸不得不去宁海车站提前买票。上午爸妈刚把小弟弟从医院打完针回来,就冒着大雪去宁海了,我无力地躺在床上盼望体温降下来,我真不想去医院。其实我回家那几天体温一直不稳定,医生是说最好别出院,可我一想到妈妈孤孤单单地在家,我也像其他病人一样自己要求出院,没料到在家才呆一个安稳夜。我感到无比的痛苦,明天妈妈怎么带小弟弟去医院呢?看到别人家欢天喜地地过春节,我的心情无比失落。[此贴由爵士乐在 2012-01-27 07:54 编辑过]

January 24

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Diary of Janet Huang (Huang Jianing) 10-17, January 2012

1月10日黄佳宁病房日记
别人借给我一本《十万个为什么》?其中有一篇为什么花盆底下有个洞?其实大家都知道:在花盆里养花,要经常浇水,否则花就会渴死。但是我们常常会把水浇多了,假如化盆底下没有孔,水积在盆里渗不出去,花的根长时间泡在水里,就会腐烂。所以,人们就在花盆底下留了一个孔,一方面使泥土保持适当的湿度,另一方面使根能呼吸空气,这样花就能健康地生长了。书真是我们的好朋友,也是知识的海洋,能解除我的孤单、寂寞,能使我们变得越来越聪明。我眼睛还没好,爸爸不让我多看,一般是他读我听。
January 10
Somebody lent me a book called TEN THOUSAND WHY and there is a passage asks why there is a hole under the flower jar? As everybody knows, one should always water the flower in the jar or it will be thirsty to die. If one gives too much water, the root will rust, so the hole can keep the moisture and catch the air to ensure the healthiness of the flower. Book is our best friend and is like an ocean of knowledge. It makes people clever and gets rid of the loneliness. Because of my eye, Daddy didn’t allow me to read too much, instead, he reads to me.

1月11日黄佳宁病房日记
这次化疗打了十四天,今天是最后一天。我眼睛上的疱疹在慢慢开始结痂,肿也在慢慢退,从明天开始,我就不用两根输液管一起吊了,要知道大冬天的,冰冷的液体从手臂上输进去,全身都是冷冰冰的。这几天两只手都是输液管,我躺在床上动也不能动,全身骨头都睡疼了,连吃饭都得爸爸喂,洗脸、上厕所都得爸爸帮忙。下午的时候,我的主治医生又来鼓励我:小佳宁,好好表现,顺利的话下个礼拜就让你回家。哦!我真是太激动了,只要春节之前能回家,我会好好配合你们的!
January 11
Today is the last day of the 14-day chemotherapy. The herpes begin to have incrustation and the pus is disappearing. Tomorrow I don’t need to have 2 needles. These days I rested in bed suffering the freezing cold liquid passing through my whole body and the sore bones without any movement. Daddy helped me with everything, eating, washing, and using the bathroom. Doctor visited me this afternoon and encouraged me. Oh yeah, I could possibly go home next week! Behave! Behave! Behave!

1月12日黄佳宁病房日记
最让我担心的是低细胞期发热,今天下午就开始了发热。刚刚疱疹好了很多,我满以为就像医生说的过几天就可以出院,我心里有说不出的兴奋,可现在心里一点底也没有了,就盼白细胞升得快、热度退得快。我一个星期要抽好几次血,只要发热就更糟糕。我抽血都抽怕了,但怕也要抽呀!可恶的病琢磨着我。
January 12
What worries me most is the FEVER. I got it this afternoon! I was so excited yesterday for the herpes is getting better and waiting for leaving the hospital soon, but now,,, They did the scary blood-drawing several times per week and it got worse with the fever. I felt so tortured.

宁海白血病孩子-黄佳宁病房日记 2012年元月13日
病房里在消毒,我现在正坐在门口输血小板,体温也在慢慢地上升。昨晚没怎么睡,药水快要挂到天亮,半个小时量一次体温,最高温度39.6度。今天不像昨晚烧得那么高,也不知道血小板输后怎么样?现在边输边过敏,全身都是红疹,痒起来真难受,医生马上给我开来抗过敏的和退烧的药,一般高烧的话不输血小板,因为输了也是白输。爸爸站在旁边不停地给我抚摸,护士再三交待:白细胞低,千万不能用手抓,破皮了就很容易感染。我痒起来真难受呀!
January 13
The sick ward is getting sterilized and I am getting the platelet in front of the sick ward. I didn’t sleep well last night with the saline and the high fever of 39.6. They checked my temperature every half an hour. My fever drops down a little bit today but I have the serious allergy with all the itchy rashes, so they gave me some medicine against it. Nurse told me not to break the rashes or it might get infected so Daddy did some gentle tickle for me. What a terrible feeling!

宁海白血病孩子-黄佳宁病房日记 2012年元月14日
今天到目前为止我还没有发热,只要不发热,白细胞就升得快,那我春节前回家还是有希望的。昨晚我身上过敏的疹子到下半夜才退完,热度也在输完血小板医生用药后慢慢地退去。千万千万再别出现任何差错,让我平平安安的回家过个好年!
January 14
I didn’t have fever today that means the WBC is increasing and I still have hope to go home for Spring Festival. All the rashes disappeared last evening and so did the fever. Please please please let me go home for Spring Festival without any more accident!

宁海白血病孩子-黄佳宁病房日记 2012年元月15日
雨从昨天一直下到今天,一下也没停息过,在雨天里,我的心情也很郁闷。我拨通了好几个宁波病友的电话,她们也都在医院里。有一、两个人可能过两天就可以出院,其她几个则要呆在医院里过春节了。她们都像我一样:花钱买罪受,而且这个罪是要我们脱胎换骨,受够了还得受。趁这两天没发热,我拼命的吃,我要让各种好的细胞快快地长,我要争取早一点出院
January 15
It’s been rained for 2 days and never stopped. My mode is very down during the rainy days so I telephoned some patients in Ningbo hospital. A couple of them could possibly leave the hospital while the others might stay. They bear the same bitterness as me over and over again. I ate a lot in order to grow more WBC and leave the hospital as soon as possible.

宁海白血病孩子-黄佳宁病房日记 2012年元月16日
我白细胞今天查出来只有几百个,所以又发热了。越是回家心急越是不顺利。今天负责配型的医生打来电话,10个点的供者找到了,叫我爸爸过去交钱办手续给供者体检。我爸爸把我托付给旁边的阿姨就去办事了。真糟糕,要是过年回不去的话,妈妈别说不能买年货,就是吃饭也成问题。平时每次打电话问她吃了没有?有时候是没吃;有时候是和小弟弟一起吃粥。家里没洗衣机,妈妈每次是趁小弟弟睡觉了才能做饭、洗衣服和做别的家务,真希望过年的时候我们一家人能在一起。
January 16
I had fever again and there is only several hundred WBC. The more I want to go home the tougher it is. The Marrow-Matching Doctor called and said they’ve found the perfect matching person and told Daddy to pay for the physical checking fee. Daddy agreed and asked the nearby Ayi to take care of me. How terrible if we couldn’t go home that Mummy wouldn’t be able to purchase or eat. Every time we called her, she either didn’t eat or just ate some leftover porridge. There is no washing machine at home so Mummy needs to do all the washings after the sleepiness of my little brother. I do hope we gather together to celebrate the Spring Festival.

宁海白血病孩子-黄佳宁病房日记 2012年元月17日
今天是我堂姐出嫁的大喜日子,要是在家的话,我爸妈都要去她家帮忙,我们都要去吃酒,可我不能出院。今早上查了个血常规:白细胞还在低,只有四、五百个。天快亮的时候又高烧了,而且眼皮上结痂的疱疹钻心的痒,护士又不让我抓,你说我怎么忍得住呢?昨晚眼皮痒基本没什么合眼,医生说是这个过程,没什么特效药,只能用手轻轻的摸,其实眼皮都被我揉红了也不管用,难受的时候只有偷偷地哭。没得过这种病,你根本体会不到我有多痛苦,我要把这些苦日子熬过去。但愿痛苦过后换来的是幸福,我每天都有这样的期盼。
My cousin sister gets married today and normally my parents would go help and we would join her wedding but I couldn’t leave the hospital. I did the Regular Blood Test today and the WBC didn’t change at all. The fever was back in the early morning and the scab was terribly itchy. How could I bear it without scratching? I couldn’t even close my eyes and there is no miracle medicine for it. Nothing helps except the tears. Nobody would understand this feeling only if he bears it. What I could do is to pray. Pray to exchange the future sweetness with my present bitterness. I pray for this EVERYDAY!

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Diary of Janet Huang (Huang Jianing) 28-12, 2011- 08-01,2012

2011年12月28日的日记
我骨穿结果出来了,坏细胞比上个疗程多一点点,白细胞有点低,今天打催白针明天再打化疗。医生说这次化疗方案换一下。我这次也是住在窗户边,躺在床上就能晒到太阳。爸爸不让我到外面跑来跑去,只能躺在床上看看书、做做手工,偶尔起来站在窗户边欣赏欣赏外面的风光。冬天大多的树上都是光秃秃的,风吹得窗户咯咯的响,有时也会卷起地上飘落的黄叶,到处都是萧条的景象。时间过得可真快,再过几天旧的一年即将过去,崭新的2012年就要来到。回首这生病的两年,让我饱尝了人世间的酸甜苦辣,但愿我新的一年脱离苦海,重见幸福,重新回到我日夜思念的校园

December 28,2011
The bone-piecing result turned out not so good with more BAD blood cells and LOW WBC so they gave me the special injection and would do a new chemotherapy tomorrow. I lived aside the window bed again to enjoy the sunshine. Daddy didn’t allow me to go outside thus I could only lie down reading and doing DIY. I could occasionally stand watching views outside. All I saw was some bared winter trees and brown leaves blown by the wind floating in the air. All I heard was squeaky window sound. How time flies! 2011 will die and 2012 will be born. I think I suffered enough bitterness these 2 years and I wish to enjoy the sweetness in the coming year. I miss my school and I am eager to go back.

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Diary of Janet Huang 12-12 till 23-12 2011

12月12日 黄佳宁的病房日记
今天下午一点多钟,我们宁海县心援志愿者的四位叔叔和四位阿姨一起送来捐款,他们是周六在宁海青少年宫搞活动募捐来为我治病的爱心救助款。这些钱是许多爱心人士爱的汇聚,正是有了很多好心人的帮助,我的病才能继续医治,我衷心地感谢你们,你们的行动和思想一次次地感动我、激励我。

December 12
Around 1 PM 4 ladies and 4 men of Ning Hai Xin Yuan Volunteer Center brought me some money which is from last Saturday’s donation at Ning Hai Youth Palace. This sum of money gathers lots of loving hearts to support my chemotherapy. I feel so appreciated, so moved and so encouraged for them.


12月13日 黄佳宁的病房日记
我们村这几天几夜都在做戏,以前没生病的时候妈妈总带我去。戏场外有炒栗子、烤肉串、水煮玉米、还有各种各样好玩的,我总是吵着妈妈给我买上一、两样。可现在我生病了,这种公共场合就不能去了,因为我打化疗后抵抗力很差,人多的地方很容易感染。今天晚饭后和前两天双休日,都有同学过来叫我一起去看戏,他们每人手里都拿着爸、妈给的零化钱,其实我的心里痒痒的,我向往以前无拘无束的生活,我喜欢那自由自在的日子,也不知何时妈妈才能带我去祠堂看戏?也不知何时我又可以手拿着羊肉串和同学们在戏场内外跑来跑去?

There were several Chinese operas in our village these days and mummy always took me there before. There was
yummy food like chestnuts, roasted beef, and boiled corns.

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Diary of Janet Huang (Huang Jianing) Nov.30~DEC.4

12月5日 白血病孩子黄佳宁的病房日记
我现在在输红细胞,化疗后我贫血很厉害,手指和嘴唇都是苍白的,头也晕乎乎的。今天查血白细胞和血小板都上去了一点,昨晚体温上去一点又自己退下来了,今天一直都正常。大概白细胞升到两千多我就可以回家休息一段时间,我盼望骨髓把好的细胞造得快一点,医院里我一天都不想多呆。

December 5
I am lack of RBC after chemotherapy. I have pale fingers and lips and I feel dizzy. They transfused me more RBC and it works. My temperature got up and down last night but it becomes normal today. I could rest at home once the WBC reaches 2000. I want to leave hospital A.S.A.P so I wish my marrow could speed up producing some good cells.


12月6日 白血病孩子黄佳宁的病房日记
这两天白细胞可能在长吧,我的体温正常了,今天医生把我的药水也减了好几瓶。上午有好几个病友都邀请我跟他们聊天,他们都说我是开心果,生了这种病还每天笑容满面

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Diary of Janet Huang (Huang Jianing) DEC 24~27

黄佳宁12月24日的日记
今天妈妈告诉我:昨天下午放学后一位陈老师带着学生代表整个正学中学向我送来捐款,里面有好几十块钱的一角,这些都是他们平时省吃俭用节约下来的。这些哥哥、姐姐为了帮助我已经是第三次送来募捐。我今天还得住走廊上,明天是圣诞节,在飞越大剧院为我搞义演,我也很想去现场,可我住院了

December 24
Mummy told me that we received some donation money from Zhen Xue Senior Middle School yesterday afternoon. This sum of money contained dozens of dimes saved by the teachers and students. This was their 3rd time to raise the money for me. I still stayed in the corridor. I was so eager to go to the Christmas Charity Show tomorrow in the Fei Yue Theatre, but I couldn’t…

黄佳宁12月25日的日记
今天是不平凡的一天,是难忘的一天,许许多多的爱心人士为了我病的缘故飞奔飞越大剧院。首先我要感谢以爱心同盟为中心的操办这次义演活动的所有爱心人士,也感谢所有关心、帮助我的人。我虽然不能去现场,但献上我最忠心的祝福:祝你们健康、平安!圣诞节快乐!妈妈说:“她走的时候爱心同盟的好多志愿者还在清理现场,也不知他们忙到啥时候才能去吃饭?”叔叔、阿姨、哥哥、姐姐…你们辛苦了!妈妈还告诉我,从北京来的袁野哥哥跟她照了相,还送上他的原唱光盘给我,并鼓励我妈妈要坚强,同时祝我早日康复!有!!!还有著名的主持人江峰和汪平哥哥、也有刘莎和曹林飞姐姐…他们都来参加这次公益活动。也有一家从北仑赶来的胡先生,他女儿也是白血病,刚移植三个月,其实他们后期治疗还需要钱,也是靠社会支助的,可他们也送上捐爱心人士,也感谢所有关心、帮助我的人。

December 25
Today is a special and forgettable day for me because of the Charity Show. Here I would like to express my deep appreciation for the organizers and those who concerned me. Although I couldn’t go to the spot, I would send my sincere regard to all of them. Wish them healthy, safe, and Merry Christmas! Mummy said all the volunteers were still busy cleaning the spot when she left. What a hard job they’ve done! Mummy said she had a picture with the Star Yuan Ye who came from Beijing. He gave me his Music Album and sent us warm encouragements. There were some other famous people there like the MJ Jiang Feng and Wang Ping. A guy from Bei Lun donated me some money. He was not rich and his daughter had the same illness as me. They also received help from the society so they would like to do something in return. Thanks a lot!

黄佳宁12月26日的日记
今天是这次住院的第四天,下午两点多终于从走廊搬进了病房。爱心同盟就像一盏灯,明亮了我的眼睛,使我不再孤单、不再害怕夜的黑。在我心灵灰暗款,太让我感动了,谢谢你们!谢谢!!怎么舍得离你而去!以前人们总把我比喻一朵花:娇艳又可爱,现在有你们不段地给我浇水、施肥,我要开得更艳、更长久!!我每天对着天祈祷:让我快点找到完全相稳合的骨髓源,让我的病不再复发…

December 26
It’s been 4 days in the hospital and I finally moved to the sick ward. The Love Alliance was like a light that lighten my eyes, send away my loneliness as well as scare, and moved me a lot. Thank you so much! How could I die! No! I was like a lovely flower that was given water and food by them, so I would have a prettier and longer blossom. Everyday I pray the god for granting me the same marrow so I could have a farewell to this illness.

12月27日的黄佳宁日记
我的骨穿检查报告还没出来,所以化疗还没开始打,化疗方案是根据骨穿结果定的。这几天就是全身检查不用打针。我又想我妈妈和小弟弟了,不知他们现在睡觉了没有?我妈妈身上有好多优点值得我学习:她勤劳、节约、朴实、坚强,为人大方,聪明、幽默,在我无聊的时候总能想出好点子出来,我不懂的问题她几乎都知道。她一个人在家带小弟弟每天抽空至少发三、四条短信询问我的情况并鼓励我,而自己没时间烧饭也跟小弟弟一起吃粥,我妈妈老是挂念着我们而很少想到自己,她过早地老了,眼角布满了皱纹,脸上长了好多斑,但在我眼里妈妈是最漂亮的。她给了我前进的动力,教我做人的道理

December 27
I didn’t start the chemotherapy because the bone-piecing report was not ready. I didn’t need to do the injunction either. I missed mummy and my little brother. I was wondering if they’ve slept. Mummy has so many advantages for me to learn from such as diligent, thrift, plain, strong, generate, smart and humorous. Whenever I was bored she would think of good ideas. Whatever I was puzzled she was sure to know the answer. Everyday she would send me several text messages to inquire and encourage me although she has to take care of the little brother. Little brother ate porridge, and so did mummy, for she didn’t have time to cook. Mummy always concerned us but ignored herself so she looked older than her age. Although there were winkles and freckles on her face, I consider her as the most beautiful women in the world. She grated me power and taught me morals.

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